There are just so many symptoms -speech,
thinking, learning, coordination, problem solving, and many many more.
Nicholas is
getting ready to go to middle school, we have looked at numerous
private schools in Virginia but he does not qualify for a variety of
reasons. We have researched home schooling using special education
educators and
we are now in the
process of looking at the public schools program. I have had to sort of
stop helping Nicholas with his work (which brakes my heart to let him
fail) so that his public school will give him the most support that
they can. I believe they are now seeing so many deficits that he will
likely be placed in a small self contained classroom where he will feel
comfortable (I hope). His academics will be blended with learning
activities of daily living.
Elliott is 9
and in 3rd grade. His ability to pay attention, even to follow a
conversation or simple command is very compromised. We are having a
meeting tomorrow at the school to determine the best setting for him
next year. It will likely not be at his school where he has so many
friends and that breaks my heart too.
The truth is that I cannot explain the words chronic and progressive to
them- how could anyone tell a child that they will only gets worse with
time, no matter how hard they try?
So we are grieving on the one hand and pushing the research with the
other, the latter being my passion and I can honestly say it is a great
source of joy.
Peace to all of you-
Edibell
we received over 
