SCF Runners Inspire their
Families and Friends to Donate Over $6,800 to MMD Research!
Richard's inspirational story was
part of the runner's packet and if you click on him, you can read about
how his niece's recent MMD diagnosis has changed his life for the
better.
Anna completed the kids run and was
greeted
at the finish line with tears of
joy from many family members. Anna's story will be featured in Skirt!
Magazine in the January issue!
A huge thanks
to 3Sports for generously sponsoring
the runners' with shirts. Many MMD conversations were happening on the
course as a result!
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2009 Gala
Saturday,
April 25
The Silent Auction Committee is doing an excellent job of obtaining
items for the gala... The creative theme team and table designers are
beginning their work to transform the Children's Museum to an Early
Hollywood/ Art Deco feast... Please save the date now... we are
planning to celebrate our efforts again this year and would love to
have you there! Please email me if your mailing information has changed.
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Facebook
Are you in Facebook? We just joined and it feels like we
just joined the human race... It is very fun and sooooo many people
are in it! "Stone Circle of Friends" is one of the
causes listed. We would love to be listed on your profile... and help
us
expand our Circle. In 2 weeks we have added over 130 new members... we
hope to continue growing and hopefully
hold fun events/ functions such as happy
hours, raffles, and Circle gifts to help raise awareness and funds in
any amount. If you are on it look us up, if you are not consider
joining just to list us by clicking on the logo.
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Dr. Mahadevan Pioneers a New
Course with SRI to Find Compounds to benefit MMD treatment.
 Giles Stone of
Harrisonburg, Va. has brought two big players to the table.
Dr. Mahadevan of UVA and SRI International a bio-pharmaceutical
company which focuses on new drug development for orphan illnesses.
SRI International will search for compounds targeting
specific
MMD sites.
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The Mind in MMD
It is hard to explain the MMD mind to teachers, friends
and
family. "Why can't they look at others in the eye? And why are they so
tired? Are they lazy, uninterested, apathetic, spoiled?"
"They seem fine... they can walk and run around the school and in the
playground? Why can't they pay attention today, they were fine
yesterday? ...Mrs. Stone has just gotten them used to one on one
learning and now they can't learn in the classroom?"
I could go on... At last, I have found an article which answers
these
questions beautifully, and I have been carrying my copy with me as a
comfort and validation of our work with the boys. Please read the
article by clicking on the link below...
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What is
Todd Doing???
Todd and his friend Randy Blythe,
lead vocalist for the Metal group "Lamb of God", are auctioning off his
Grammy Nomination Medallion and certificate on eBay. The funds will go
to The Myotonic Dystrophy Foundation, to support MMD research.
You can go to Myotonic.com starting in
late January 2009 to bid or click on the medallion above. The band is
touring North America all this month. A Grammy is a difficult item to
part with...
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